Unable to Tolerate Migraine Medication, She Turned to CEFALY: Lori’s Migraine Story
About Lori
Âge : 52 ans
Location: Fayetteville, North Carolina
Nombre d'années de migraines : 10
Occupation: Developmental Therapist (infants/toddlers)
How long have you had migraine?
10 ans
À quel moment se déclenchent habituellement vos migraines ?
Il n’y a aucun schéma. Je n’avais eu aucune migraine jusqu’à 42 ans quand c’est soudainement apparu. The severity prompted multiple neurological studies and testing including tests for TBI and MS. Initially, the first migraine was so severe it was feared it was a brain bleed.
What did you try before CEFALY?
Multiple medications. However, I experienced the MOST extreme side effects and all had to be terminated.
À quoi ressemblent vos migraines ?
Des nausées, des vomissements, des étourdissements, des évanouissements, une vision déformée, la démarche instable, l’incapacité à m'asseoir, conduire ou marcher pendant les périodes les plus sévères. J'ai des lésions au cerveau et comme elles sont un peu partout, la migraine peut se déclencher n'importe où. When I have a migraine it's very sharp, almost feels like a seizure might but within my brain. It's hard to explain.
Comment avez-vous eu connaissance du CEFALY ?
My neurologist suggested it as we could not get my migraines under control with medication due to the side effects.
Quelle est votre expérience avec le CEFALY ?
AMAZING. I can use it any time of day outside of my nightly use and I have been able to eliminate all meds except for promethazine, which controls the nausea during or after treatment with my CEFALY.
Pourquoi avez-vous souhaité partager votre histoire ?
Far too much emphasis is often placed on pharmaceutical options. Due to my extreme side effects with all kinds of medications-even diphenhydramine [Benedryl]-I was suffering without any end in sight. J'avais arrêté de travailler, j'étais essentiellement clouée à la maison à moins de sortir accompagnée en cas d'évanouissements et j’avais des migraines qui duraient pendant des semaines. CEFALY allows me to treat the migraine at onset, but also I can use it nightly as part of my bedtime routine and often thwart the daily migraines I was having.
At the onset of my migraines my first migraine lasted 6 weeks with hospitalization. IV drugs as well as a litany of other drugs attempted to reduce or relieve the migraines, but they did not work. J'avais abandonné l'espoir de vivre sans migraines et j'apprenais en fait à vivre avec la « douleur ». Certains jours étaient meilleurs que d'autres, mais le pire était l’attente de ponctions lombaires pour qu’elles soulagent au moins temporairement les migraines pendant une semaine ou deux.
Now with my CEFALY use on a daily basis I have gone from 15-20 migraines a month to 3-5 a month with reduced intensity, and duration. Je trouve également que le fait de pouvoir utiliser l'appareil à la fois en prévention et au début d'une migraine a énormément contribué à ce résultat.
I am thankful each day that my neurologist looked outside of the pharmaceutical box to offer other suggestions. While at first I felt that the CEFALY was "too good to be true," after 6 months of tracking my migraines it truly went above all claims. My neurologist actually said after a year of treatment that I could be a spokesperson for CEFALY because it has worked so well for me. Because of underlying issues with my MRIs I was not a candidate for neurotoxin injections and basically was out of options before CEFALY was approved by the FDA. I was given my RX for CEFALY within weeks of the FDA approval and have benefited greatly ever since. My medical records substantiate the efficacy of CEFALY in my situation and the fact that I have gone from almost monthly neuro appointments to yearly follow ups is in itself a success story.
(Interview from 2020)
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